3 Comments

  1. I love this blog and I celebrate your successes. I fear that there are several obstacles to others wishing to emulate your journey.
    Obviously, the first as you have acknowledged, are the advantages of you being a highly educated and informed team in the right fields. Unfortunately not a common advantage. The next I can see from my own perspective is that a) multiple professional assessments are beyond the financial reach of many parents and even with plenty of cash, identifying a good professional who will provide specifics are another challenge.
    Then – let’s imagine you have helpful reports; a school that will fit the bill. I can safely say there is no school in my area with any kind of enthusiasm for genuinely supporting SEND, even specialist schools who often will not consider children with challenging behaviours (you may then be signposted to Behaviour schools which may possibly not hit the high marks regarding educational attainment).
    Yes, there are schools with an autism facility – which I’m sad to say are hopelessly missing the point in many cases. When you have a highly able child who has trauma damage from years of masking, the prospect of joining ‘the rainbow room’ is not a bright one. And then you always have the experiences of other reasonably savvy parents ringing in your ears… not good. Alternatively , there may be a promising placement an hour away. Not on your nelly, says the child who barely manages to wear shoes and leave the house. An hour of anxiety, then 6 hours of coping with sensory overload, then ANOTHER hour of holding it in before exploding at their safe place, home. I have heard stories of children regularly arriving at home with bloody faces from repeatedly smacking their heads against a taxi window.. and so on.
    This is why so many parents are both electively and non electively with no choice but to home educate. I’m really glad you’ve found the right environment for your child. I wish that this could be the norm. But I’m not expecting that to be the case any time soon.


  2. Sadly the comment above also resonates to some degree in my work supporting parents. The ‘system’ has a long way to go but so few are the good stories I care to celebrate and share the beacon.

    Love the fruit salad.

    “These skills of being able to know him and understand his unique “Fruit Salad” of ASD, and to respond with subtlety and appropriate approaches and or differentiation of his curriculum as needed.”

    I use ‘flavour’ of autism. Your is more colourful!

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